Journal of Case Reports and Reviews in Medicine (ISSN: 3069-0749)
Research Article Volume: 1 & Issue: 3
Abstract
Objective: To iteratively modify and fi nalize patient and clinic personnel materials for an implementation study of a systemic lupus erythematosus (SLE) patient decision-aid.
Methods: We conducted a mixed-methods study. We used a semi-structured interview guide to debrief consecutive patients with SLE at our rheumatology clinic and our clinic personnel, to receive feedback on the lupus decision aid, clinic personnel surveys and interview guides. We also used brief surveys.
Results: We studied several cohorts: (1) Decision Aid Debriefi ng Patient Cohort after viewing the lupus PtDA (n=20): mean age, 51.1 years (standard deviation, 14.7); 19 females and 1 male; (2) Whiteboard Debriefi ng Patient Cohort after viewing a whiteboard animation (n=11; all female: mean age, 44.7 years (standard deviation, 14.1); (3) Clinic Personnel Decision Aid interviews (n=4) and Clinic Personnel Survey Cohort (n=7). Most patients (45%) were pleased with the way the decision-aid was presented; and how these medications helped disease management and compared to each other for benefi ts and harms (55%). Most patients (70%) found the length of the decision-aid appropriate. Majority of the patients agreed (81%) that the lupus PtDA will be useful for making treatment and medication decisions in the future. Patients requested a decision-aid phone app version. Some patients were concerned about the contents being too focused on treatment of lupus kidney disease. Clinic personnel provided feedback on their surveys being easy to understood with minor exception and provided comments for the modifi cation of their interview guide.
Conclusion: We successfully iteratively modifi ed and fi nalized patient and clinic personnel materials for our implementation study